Katherine on tiredness from treatment
Tuesday 29 March 2022
Maggie's, Edinburgh
Katherine was diagnosed with stage three breast cancer on the third day of the first lockdown in 2020. Here, she tells us how Maggie's played a crucial part in her treatment plan during such a confusing time.
My diagnosis
During the first days of the pandemic, I was landed with an additional piece of news: I now had cancer. I was turning 30 in two weeks.
In the hospital, things were changing constantly. Staff were being redeployed; systems changed overnight.
My breast care nurse knew that Maggie鈥檚 were able to provide on-going support, and that was a guarantee.
My diagnosis was stage three, grade three breast cancer, HER-2 positive and hormone negative.
On the day I was diagnosed, I was told my treatment would be completed in nine months. But by the time it finished, my treatment had lasted 18 months.
I had ten rounds of chemotherapy before surgery, which was a lumpectomy and auxiliary clearance, before 19 rounds of radiotherapy. I then started another chemotherapy drug which took me from January to October 2021, another 14 rounds 鈥 so 18 months of treatment in all.
There鈥檚 an added three years of infusions and injections after this as well.
Things have just constantly changed, and it鈥檚 been a challenge to keep up with, emotionally, physically, in every sense.
But Maggie鈥檚 has been a very consistent part of an ever-changing treatment plan.
Treatment fatigue
Maggie鈥檚 has been a fluid part of my treatment, able to fit into any aspect needed. It鈥檚 become what I needed at every stage.
I鈥檝e spoken to Maggie鈥檚 a lot about treatment fatigue. I鈥檓 not only tired from treatment, but tired of treatment. Those frequent changes in expectation are hard on the body, and harder on the mind.
There鈥檚 only so much one person can go through, and it鈥檚 an issue I feel a lot of people may experience, but that isn鈥檛 talked about enough.
As I鈥檓 in the first wave of people using the drug for primary breast cancer, Andy at Maggie鈥檚 and I have been able to feedback to the oncologists on the emotional toll it鈥檚 taken.
I have hit an emotional burnout, complete exhaustion from battling ongoing treatment for 18 months.
I鈥檝e used up every single ounce of energy to get through that phase, focusing on the three weekly milestones of the next round of chemo.
Now that it is over, there is no regular milestone, no 鈥淚n a few days, I鈥檒l feel better and can do more so I鈥檒l plan for that!鈥, it鈥檚 ongoing, a slow recovery and at times I regress and need a few days on the sofa, and other days I surprise myself and have a normal day when I can run around and be busy and active.
Those are my favourite days and the ones I miss the most!
Coming through treatment
I've spoken to a couple of people I know who have had cancer and come out the other side, and they have said with glee 鈥淥h, do you feel different yet? No? It鈥檒l come!" I don鈥檛 feel different yet, but I鈥檓 hopeful it will come.
For those people ten years down the line who say they feel different, is it a self-fulfilling prophecy, an unwritten rule from one cancer patient to another, by being asked, is it likely that I will feel different?
If it鈥檚 not, I like the idea that it could be.
I鈥檝e learnt to focus on the positive, and push through some truly awful and challenging times. This is a lesson I will take forward.
There鈥檚 a weird part of me that鈥檚 glad it鈥檚 happened. I just don鈥檛 feel stressed out by the same things I used to.
What鈥檚 to fear? I鈥檝e already had cancer. I have a new perspective. I have this understanding now that if anything鈥檚 going to happen, there鈥檚 nothing I can do, and it鈥檚 completely out of my control, and I just have to accept it鈥nd that鈥檚 pretty cool.
Looking forward
I鈥檝e moved back into the flat that I moved out of just before my diagnosis and the things that used to bother me don鈥檛.
I have new life goals, I want things to be more fulfilling. I want to focus on what鈥檚 important to me.
There will continue to be unknowns, of course, but when I think about the future now, I know there鈥檚 a new balance I need to get right between incorporating cancer into my life and not letting it dictate it.
I have to remember that it鈥檚 there, but also use that as an encouragement to do exactly what I want to do.
I鈥檓 in a new relationship, and I鈥檝e been travelling for three months.
Finally, after 18 months of feeling life pass me by, I can look up and see it鈥檚 there for the taking.
We're here for you
If you or someone you love has cancer, 欧美无码 is with you.
Come and see us at your nearest Maggie鈥檚, call us on 0300 123 180 or email us at [email protected].
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